Today has been one of the most exhausting days I think I have ever been through. Ada has been having the same issues she has had for a while and I was taking the steps necessary to get her into a specialist here but of course, how it always goes with tricare, it was taking forever! Well then this morning there was some concerning things, Ok more like freak out things, happening so I took her straight to the ER. Of course the lady tried to brush me off again and tell me she would put through another refferal to the specialist but that can take up to 3 months. So I flat out told the lady I wasn't leaving until someone did something to make my child better. I said what would you want done if you had a kid that was throwing up almost every day and refusing to eat and not gaining weight and getting sicker by the day...she looked at me, and as tears were running down my face I think she finally got it. So needless to say she called down a specialist from the peds unit upstairs and FINALLY someone would hear me out on her. Well after they started looking at her he realized that I did really have a sick baby and I wasn't jsut some over paranoid mother. We are in the middle of a bunch of tests being ran right now. Today they ran more tests on her then I think any parent would want their kid going through. It was awful! I hated every second of it and all I wanted was to take the place of my sweet baby girl. Why couldn't I be sick and not her? And having Scott so far away makes the situation about a million times worse. As far as what they have discovered I dont know yet. I only have some of the answers. They will be running more tests this week and I have an appt on Tuesday to go over everything with the specialist and figure out where we go from here. They did find that she has a heart murmur and also an irratic heart rate. They are not the same thing and we are not sure the extent of it. Its a completly new issue that the doctor was shocked had never been found before. Also they are running cat scans on her head becasue of throwing up and the fact that my kid is always falling down. I know I jokingly call her a clutz all the time, guess I never thought to think it could be a warning sign that something else is wrong. And then as far as he intestinal issues go, they are worried she may have some kind of a flipped intestinal track. A condition that would be considered life threatening if not treated. Like I said I dont have much to offer yet cause I myself dont have all the answers. For right now I am supposed to just keep her calm and content. Feed her what she will eat and make sure she is hydrated. Not sure what else to say. Today has been the longest of my life and I am drained. I need my husband home. I dont know how single moms do it but I give them all the credit in the world. I dont think I have ever felt as alone as I did today.
On a side note, I had to go to Wal mart to get her some pediasure so that she was getting more nutrients. Well I decided that she deserved a new toy after such an exhausting day. We were there for almost 7 hours running tests. I got her the cutest little stroller for her baby doll. And then when we were in the baby section getting the pediasure she saw some Dora pjs that she kept saying Dora! Dora! Backpack! Dora! So I couldn't help but get them for her. Here she is still playing even after a day like that.
May End of Year Celebrations and Friends
2 months ago